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Resources
There are several organizations that can provide support and a community for those with rare diseases and their families. Below are several organizations with a link to their websites.
Rare and Undiagnosed Network - https://rareundiagnosed.org/
Global Genes - https://globalgenes.org/
NORD - National Organization for Rare Diseases - https://rarediseases.org/
Children's Craniofacial Association - https://ccakids.org/
Make a Wish Foundation - https://america.wish.org/
Gene Matcher - https://genematcher.org/
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